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Relevant Links

Comox Valley Hospice Society
The Comox Valley Hospice Society/CVHS provides care and support to those who are living with dying, grieving and caregiving. CVHS works with community partners in the Comox Valley to promote conversations about advance care planning through educational workshops and community events including National Advance Care Planning Day - April 16th.  

MY VOICE - Expressing My Wishes for Future Health Care Treatment (PDF)

Printed copies of My Voice: Expressing My Wishes for Future Health Care Treatment can be obtained by donation at Advance Care Planning Workshops hosted by Comox Valley Hospice Society/CVHS or at the CVHS office. 

Canadian Hospice Palliative Care Association/CHPCA

The CHPCA is the national voice for Hospice Palliative Care in Canada advancing and advocating for quality end-of-life care in Canada. Current issues and hospice palliative care resources are shared along with links to the National 'Speak up' campaign. Part of a larger initiative on Advance Care Planning/ACP in Canada, 'Speak Up' is overseen by a National Advance Care Planning Task Group comprised of individuals representing a spectrum of disciplines including national non -profit organizations, health care, law, ethics and research. National Advance Care Planning Day held annually in Canada on April 16th is a day for you and others to think about and share your wishes for future health care. Speak Up is about conversations; it's about wishes and it's a way to show how we care for each other.

CHPCA -  Speak Up Advance Care Planning BC Workbook

The 'Speak Up' - Advance Care Planning BC Workbook will help you think about what's important to you - and what you'd want people to know if you couldn't speak for yourself. The Workbook includes questions that can help you think about your values and beliefs, and what you would like others to know. You can answer as many of the questions you like, and your answers will become part of your summary plan when you complete your Workbook. 

Speak Up! Advance Care Planning video

Speak Up - Five Steps of Advance Care Planning video

Speak Up - What's Right for YOU at the end of life video

 

Don't Panic - It's OK

 This letter was written by Dr. Karen Boudreau, MD for her family as part of an initial Conversation about Advance Care Planning. See also 'The Conversation Project'

The College of Family Physicians of Canada- Advance Care Planning Resource for Patients

Advance Care Planning gives you time to consider and reflect on the kind of health and medical care you would consent to, or refuse, in a crisis. The best time to make an advance care plan is when you are younger and your health is still good. 

BC Government - Advance Care Planning - Making Future Health Care Decisions

Advance care planning begins by thinking about your beliefs, values and wishes regarding future health care treatment. It is about having conversations with your close family, friends and health care provider(s) so that they know the health care treatment you would agree to, or refuse, if you become incapable of expressing your own decisions. Steps to creating your Advance Care Plan are highlighted in this link. 

Island Health/Vancouver Island Health Authority 

Island Health/VIHA resources on advance care planning.

Health Care Providers Guide to Consent to Health Care
In recent years the laws surrounding consent to health care have become more formal and more technical. This is largely due to the desire to increase self-determination in the making of health care decisions. For health care providers this means providing enough information so that adults or their substitute decision makers can make informed decisions about consenting to or refusing treatment. For adults this means finding ways to express their wishes in advance so that if they become incapable, their wishes will be respected and followed. This Guide is designed to help health care providers understand the basic legal requirements for securing a valid consent (or refusal) for a proposed course of health care treatment for an adult in British Columbia, as of September 1, 2011.

How to Decide about Cardio-Pulmonary Resuscitation:This video was prepared as a Decision Aid to help prepare patients and their families for shared decision making about Cardio-Pulmonary Resuscitation (CPR) and what to expect following it's use. J. Kryworuchko, R. Gallagher, R. Fowler, D. Heyland & D. Nicolle (2012) 

Get Talking - Consumer Protection BC 
Tips to help you talk to your loved ones about their end-of-life wishes including Help for Consumers - Cemetery and Funeral Services

Being Mortal: Medicine and What Happens in The End - by Dr. Atul Gawande

Medicine has triumphed in modern times, transforming the dangers of childbirth, injury, and disease from harrowing to manageable. But when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should. Through eye-opening research and gripping stories of his own patients and family, Dr. Gawande, a surgeon, writer and public health researcher reveals the suffering this dynamic has produced.  

The Conversation Project

The Conversation Project began in 2010 and is dedicated to helping people talk about their end-of-life wishes. This group recognizes that when it comes to end-of-life care one conversation can make all the difference. Early in The Conversation Project Dr. Karen Boudreau shared a Letter written to her family outlining her personal wishes  'Don't Panic' - It's OK Letter (PDF)

Consider the Conversation

Released in 2011, ‘Consider the Conversation: A Documentary on a Taboo Subject’ is an intimate story about the American struggle with communication and preparation for life's end. It contains the perspectives of patients, family members, doctors, nurses, social workers, clergy and national experts from around the country. The goal of this film is to inspire dialogue between patient and doctor, husband and wife, minister and parishioner, parent and child.

How Doctors Die: Consider the Conversation

“Consider the Conversation” is a documentary film that examines how 21st Century Americans live at the end of their lives. Researched and produced by Terry Kaldhusdal, a fourth-grade teacher at Magee Elementary School in Genesee Depot, Wisconsin, and Michael Bernhagen, Rainbow Hospice Care’s director of community engagement in Jefferson, Wisconsin, together they spent nearly 3,000 hours on producing the documentary. Included in their research were numerous physician interviews asking about what kind of care doctors would want or not want if they knew it was their time to die? This portion of the documentary video is a compelling conversation about what doctors would want taking into consideration their experiences as health care providers.

Love Your Life To Death: How To Plan and Prepare for End of Life So You Can Live Fully Now

Nurse and Author Yvonne Heath, stresses the importance of planning for your death, no matter where in your life you are. “The best time to plan for end of life is when you’re young and healthy; the next best time is now,” she says. Discover how living fully can help you die peacefully and learn how to start "The Talk" about end-of-life wishes and planning.

Five Wishes

Five Wishes is changing the way America talks about and plans for care at the end of life. Five Wishes has become America’s most popular living will because it is written in everyday language, and helps start and structure important conversations about care in times of serious illness.

Best Endings
Online blog for those who want to talk about end of life issues.

Engage with Grace

Engage With Grace: The One Slide Project was designed with one simple goal: to help get the conversation about end of life experience started. The idea is simple: Create a tool to help get people talking, One Slide, with just five questions on it. These Five questions are designed to help get people talking about their preferences.

In My Time of Dying
A documentary project from KBTC Public Television, In My Time of Dying explores the way we approach the end of life in America, and brings together diverse voices to ask new questions, and challenge old notions. Interviews with medical experts and spiritual leaders are woven together with intimate portraits of people facing imminent death.

On My Way to the Funeral Parlour: A Guide to Living and Dying in BC 
A guide to help you find out what you need to do to ensure your health care desires, and your financial concerns are legally stated, so they can be carried out according to your wishes.

Before I Die...
Before I Die... is an interactive public art project that invites people to share their hopes and dreams in public space.

No CPR British Columbia - Free MedicAlert® Membership & No CPR Bracelet
The No Cardio-Pulmonary Resuscitation (No CPR) program is a cooperative effort between Canadian MedicAlert® Foundation, Emergency and Health Services Commission - British Columbia Ambulance Service, Ministry of Health Services, and British Columbia Medical Association.

LGBT End-of-Life Conversations Website 
Fostering End-of-Life Conversations, Community and Care among LGBT Older Adults' aims to foster effective communication, create community and facilitate care for LGBT persons at the end-of-life. They aim to raise awareness of the unique challenges that this population faces as they age and approach end-of-life.

Office of the Public Guardian and Trustee/PGT

As part of the Public Guardian and Trustee or PGT’s mandate, assistance may be provided in preparing representation agreements for eligible individuals

 "I didn't want that... choosing where you wish to die" 

If you had a choice, where would you choose to die? This film shows how difficult it can be for families to make that decision on a loved one’s behalf. Here we see a granddad, daughter and granddaughter struggling to cope with an impending death. With moving performances and reflections on happier times, this short film highlights the importance of discussion for all involved. A carefully crafted short film, which highlights the importance of making your end of life wishes clear, from deciding whether you wish to be resuscitated to planning your funeral. Consisting of five scenarios, which came as a direct result of community involvement, the film conveys a powerful and emotionally charged message. This poignant resource has been created to act as a stimulus for changing the way the nation thinks about death. http://www.dyingmatters.org

 

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